Tag Archive | quality of life

Persistence

Through grueling hours, days of persistence in pursuit of a highly skilled surgeon to even review his case, my brother and his endocrinologist feel they won the lottery.

It was not easy.

Working with an insurance company.
Sometimes they seemed like a heartless lot without an inkling of a soul.

Sifting through online documents trying to find just the right, highly skilled surgeon who in turn would be approved by the insurance company, and who worked at an approved facility. Not an easy task.

Calls were made. Return calls were anticipated.

Finally. A call they had been waiting for. A highly skilled surgeon told them to send him all the documents regarding the case so he could review them. All the local documents, test results and all of the same from the Mayo Clinic.

We could now all breathe a bit easier, especially my brother and his doctor.

Couple this search with the fact that both my brother and his doctor are working a full schedule. Both have a life away from work. Both want the best possible outcome for my brother. I feel like he won the lottery when he was assigned to this doctor. She’s the best and I could never thank her enough for all she’s done for my brother. For what she’s done for my family.

The highly anticipated call came. After reviewing the case, the highly skilled surgeon, at a Seattle hospital said he would do the surgery. AND… both the surgeon and the hospital were approved by the insurance company.

Mixed emotions. While my brother was so impressed with the Mayo Clinic and knew he’d be in good hands there, he is comfortable with the man who will perform the life-saving surgery closer to home.

Again… a lottery win.

Persistence paid off.

Mom taught us that.

In Between

Last week my brother and sister-in-law celebrated their 32-wedding anniversary in Rochester, Minnesota.

They weren’t truly celebrating in Rochester by their own choice. They had traveled to Minnesota so that my brother could be examined by specialists. His local endocrinologist had sent him there for highly specialized care.

My brother and his doctor are battling stage 4c papillary thyroid cancer. He’s endured having his thyroid removed, two sessions of radioactive iodine and countless examinations. He’s endured being told that ‘this is the best kind of cancer to have’……. whatever that statement means. He’s endured two surgeries and recovery periods. He’s endured nerve pain and dealing with the scarring due to those surgeries. He’s endured bouts of sleeplessness and swelling that hampers his swallowing. He’s endured the balance of getting enough rest and trying to get back to work. He’s endured his own concern for his family and the high cost of treatment.

Last Friday, my brother called me to let me know of the results of all this testing which included a painful biopsy of tissues in his neck. (I was wrong in thinking that what I read online the day before was correct, that the biopsy would not be all that painful. I know that my brother has a high pain tolerance, so I know that it really hurt.) He told me that he met with a team of specialists.

The surgeon and endocrinologist told him that at this point, surgery was no longer an option, it is a MUST. Beam radiation treatments won’t get all the cancer cells.

The two previous treatments of radioactive iodine had not done their intended job. Now, the small amount of cancer cells that had hidden during the thyroidectomy have grown in number and have become aggressive.

The surgeon gave my brother detailed information regarding the surgery. He also gave him the golf analogy “a hard lie” to express the difficulty of the surgery. Even though my brother does not play golf, he understood the stark reference.

Now he was caught in between a difficult surgery, a known painful recovery and an unknown quality of life … or …. worse, if no treatment, way worse.

A tentative surgery date was schedule.

That’s a lot to digest and deal with. ┬áCalls to family had to be made. Results had to be relayed.

And… as if ALL this was not enough, my brother called me the next day to tell me that the insurance company was balking at coverage. They stated the Mayo Clinic is ‘out of network’ and if that did not change and he went ahead with the surgical treatment there he would be financially responsible for half the cost. I did my best to assure him he’d have help paying for the treatment if he were to go ahead with it. I’d help to pay every month for as long as it took. I’d enlist other family to help him too. He said that they’d have to jump through hoops to get the insurance company to authorize the treatment whether in his home state at a facility approved by the company or after looking over the exam records possibly allowing treatment at the Mayo Clinic.

My brother is caught. Caught in between.

In between the specialists who know how difficult and yet how necessary this surgical treatment is and the insurance company not prepared to cover the cost at a facility ‘out of network.’

In between the necessary treatment and great concern for being so far in debt that he’d never get out.

A tough place to be, yes, ‘a hard lie.’

And, in between the team of specialists and the insurance company.

My brother’s quality of life.

In between

My brother’s life.